People.com

Chris Edwards built the original PrestonAndSteve.com and his family needs your help

When the Preston and Steve Show came to WMMR in 2005, Chris helped to create and build our very first website. Of course, we always appreciated his abilities and support of our show.

This year, he and his wife, Kasey, are facing an enormous challenge. Their daughter, Robbie, was diagnosed with an INCREDIBLY rare disease, called SPG-47 or hereditary spastic paraplegia type 47. It is SO rare, in fact, that there are only 11 documented cases in the world. Eleven. The only other documented case in the United States comes from a family in Horsham, PA, the Duffys.

chris

SPG-47 causes a decline in everyday cognitive and physical functions.

Chris and his wife Casey, along with the Duffy family, are featured in the current issue of People Magazine and on People.com.

people


Toddler Best Friends Struggle with Same Deadly Disease as Parents Search for a Cure: 'We'll Never Give Up'

When Molly Duffy and Robbie Edwards, both 3, met in person for the first time at Boston Children's Hospital in November, it was like they'd been best friends forever. The tiny tots, who both have light brown hair, sparkling blue eyes and infectious, toothy grins, could pass for sisters.


You can learn more about this disease by reading the article on People or checking out People's Twitter account:

People Magazine on Twitter

Toddler best friends struggle with same deadly disease as parents search for a cure: 'We'll never give up' https://t.co/wbYxjty2Cv

You can also learn about SPG-47 on THIS website or on Twitter.

CureSPG47 on Twitter

https://t.co/BxvZ0VTRjZ #curespg47

The Edwards' goal and the Duffys' goal is to spread the word and educate people about this and other rare genetic diseases.

Article and photos and video via People.com:
Toddler Best Friends Struggle with Same Deadly Disease as Parents Search for a Cure: ‘We’ll Never Give Up’