The Childrens Tumor Foundation Download

29:24 Download February 1st, 2022

From the Children’s Tumor Foundation, Simon Vukeli, Chief Marketing Officer, and Volunteer and Philly Cupid’s Undie Run Race Director, Sandy Frenia, discussed Neurofibromatosis (NF), a chronic disease in which benign tumors grow into the patient’s nerves.  Depending on the severity, it can be undiagnosed until late in life or cause serious complications such as seizures, blindness, deafness, immobility or other impairments.  In some cases, it can lead to rare cancers.  The disease is genetic and that is why the Foundation became the Children’s Tumor Foundation, you are born with it, 1 in 3,000 births.   Diagnosis comes from tell-tale birthmarks or through developing symptoms.   The Foundation directly funds research, referrals and hosts the world’s largest NF Conference.  
Looking to raise money volunteers created the Cupid‘s Undie Run, a ‘brief’ fun run that happens in the middle of a party.  In Philadelphia, it will be Saturday, February 19 at Xfinity Live!  Guests wear their ‘Bedroom Best’ to help fund the research for a cure, better treatment, and education programs.
For more information visit ctf.org
To register for the Cupid’s Undie Run go to cupids.org

Podcasts you may like

Her Story

Kathy Romano presents “Her Story,” a weekly tribute to women every Sunday morning at 7am on WMMR. She will introduce you to another woman making a major difference in the […]

Play Latest (July 12th)

118 episodes

Preston and Steve®

Weekday mornings on 93.3 WMMR Philadelphia with hilarious conversation, celebrity interviews & contests from people a little goofier than you.

Play Latest (July 17th)

2337 episodes

MMaRchives

Conversations with WMMR’s Pierre Robert, Jacky Bam Bam & Brent Porche.

Play Latest (May 21st)

1124 episodes

The Bizarre Files

Daily news of the weird and wild from The Preston & Steve Show on 93.3 WMMR, Philadelphia.

Play Latest (July 17th)

1753 episodes

Preston & Steve’s Fun Size Podcast

A favorite segment from our show…celebrity interviews and free-wheeling conversation appropriately sized for your busy day.

Play Latest (March 27th)

313 episodes