Breakthroughs for Billy – Fighting Against SMA
  • This event has passed.

August 2520193:00 pm - 7:00 pm

Breakthroughs for Billy

Sunday, 8/25  •  Hotel Fiesole in Skippack

Please join us on Sunday, August 25th, for a day of hope in honor of William, a 1-year-old boy who was diagnosed with a rare, serious genetic disease called Spinal Muscular Atrophy (SMA) in March 2019. SMA is a degenerative condition that causes weakness and wasting of the voluntary muscles, eventually impacting every muscle in the body hindering the ability to walk, stand, sit, eat and breathe. It is the number one genetic cause of death in infants. There is no cure.

His parents, Bill and Amanda, are doing everything they can to get him the best possible care, which includes invasive treatments, physical therapy, occupational therapy and respiratory therapy, to improve his quality and length of life. His older sister, Liliana, loves her little brother very much. She encourages him daily and tries to teach him new things.

Since the day SMA became a part of their reality, the Shirk family’s life has been dramatically altered. As do all families who have children with crippling diseases, the Shirks must adjust many aspects of their lives—their home, their daily schedule and their future, a tremendous and never-ending undertaking. Proceeds from this event will help them with the financial strain associated with the progressive burden their family is facing.

While the future remains uncertain for the Shirks, there is every reason to be hopeful! Daily therapies and breakthrough medicines have already allowed Billy to make significant improvements to his physical health, despite his degenerative disease. Billy is brave, he is determined, he is full of life and his fighting spirit will let nothing stop him!

The event will feature silent auctions, raffles, games, music and more. Cash or checks accepted. All are welcome! For additional information, contact breakthroughsforbilly@gmail.com